The Canadian Association of Psoriasis Patients was formed to better serve the needs of psoriasis patients across the country.  We are a subsidiary of the Canadian Skin Patient Alliance and strive to improve the quality of life for all Canadian Psoriasis Patients.

 

Our Mission and Vision 

 

Mission Statement

To be a resource and advocate for psoriatic patients and their families

to improve patient care and quality of life.

Vision Statement

Equal access to best care and treatment

 

Who We Are

The Canadian Association of Psoriasis Patients is run by a dedicated staff and a committed Board of Directors, who are either psoriasis and/or psoriatic arthritist patients themselves, family members of psoriasis patients, or individuals committed to furthering CAPPs Mission.

 CAPP is proud to represent Canada as a member of the Internationl Federation of Psoriasis Associations (IFPA) . 

Staff:

Kathryn Andrews-Clay - Executive Director

Kathryn profile pic

 Kathryn Andrews-Clay started with the Canadian Association of Psoriasis Patients  (and the Canadian Skin Patient Alliance) as Executive Director in March 2015. Kathryn brings years of experience at the Senior Management level in both the public and voluntary health sectors.

For the last ten years, she was a Director at the Canadian Institutes of Health Research – last two years as Director of Institute Affairs and previously the Director of Partnerships & Citizen Engagement. At CIHR, she led the very successful Institutes Model Review on behalf of the Governing Council in 2014 and won a Leadership Award for her commitment to collaborative and ethical partnerships in 2013. Kathryn was also the inaugural Executive Director of Leadership Ottawa, a program to develop community leaders at the local level. She has a wide range of skills including stakeholder engagement, financial management and operational planning.

Kathryn volunteers for Dress for Success Ottawa, an organization dedicated to giving disadvantaged women the opportunity to establish and advance in a career of their choice. She is looking forward to making a difference to patients living with skin conditions, diseases and traumas. She lives in Ottawa (and is a RedBlacks fan!) and can be reached at

Helen Crawford - Manager; CAPP Programs, Social Media and Governance

image1Helen has worked for the Canadian Association of Psoriasis Patients since it's inception and also works for the Canadian Skin Patient Alliance.  Helen is often the voice you hear on the end of the phone and she is committed to the work of both the CSPA and CAPP.  She works alongside the CAPP team to ensure that the needs of Psoriasis and Psoriatic Arthritis patients in Canada are being addressed.

Helen is also a devoted mother of two teen age boys and is an active community volunteer who sits on two different school Parent Councils, is on the Board of Directors for the Nepean Minor Hockey Association and volunteers for D.I.F.D, an organization aimed at bringing awareness to youth mental health. 

You can contact Helen by email at   

  

 

 Board of Directors

 Eva Borkenhagen - President

evaHello, my name is Eva and I have had psoriasis since I was about age 5, so most of my life! In some ways I’ve grown very accustomed to dealing with my psoriasis, and in other ways, I still struggle with accepting it and learning to live with it, for life. There are many social and emotional challenges that come with living with the ‘physical’ disease of psoriasis. I am always looking for ways to continue to educate myself, and help others through the process, because after almost 25 years of dealing with this disease, I’ve just about seen it all!

Despite the difficulties, I never let my psoriasis stop me from living life the way I want to. I’m currently pursuing my residency to become a registered psychologist, and I pride myself in helping others every day of my life.  I have been a board member of CAPP since its inception. I am still learning and growing through this disease and in life, as many of you are. I felt alone and embarrassed for many years because of my psoriasis. Now, I’m so pleased to be part of an organization that helps create an atmosphere where we can learn and grow proudly together.

 Brooks Harvey - Vice- President

brooksHello.  My name is Brooks Harvey, I’m a born and raised Calgarian. 

I was diagnosed with Psoriasis at the age of 8yrs young. As if the challenges of school, sports, and adolescence weren’t hard enough, I was saddled with this seemingly incurable condition. I remember many years struggling with my confidence and disengaging from society to hide my Psoriasis. This isn’t the way anyone should grow up. I thank my loving parents for doing everything in their power to help me with the challenges associated with Psoriasis and let’s not forget my “big brother Barrett” for his patience and acceptance…he was and will always be an inspiration to me.  

As I matured I’ve found strength in public speaking about Psoriasis. I did my first “patient talk” at the encouragement of my doctor and friend at the age of 25. I have represented Psoriasis patients at forums and conferences across North America and will continue to provide a voice for the masses whenever I can. As a board member of CAPP we have many goals, but none more important to me than helping patients suffering from Psoriasis live a better life.

My professional life consists of working in Business Development for a water management company servicing the Construction/Environmental industry. When I’m not working you can find me at the local rink coaching hockey or in the Rocky Mountains hiking, climbing or snowboarding. 

Bernie Borkenhagen - Treasurer

bernieMr. Borkenhagen is a senior-level Management Consultant with over 30 years of consulting and management experience with an International technology consulting firm, in private practice and in the telecommunications industry. He has provided consulting services to Health Care (Telehealth/Telecare), Oil & Gas/Pipelines, Utilities, Government, Transportation and the Telecommunications industries. Key areas of expertise include strategic planning, governance and project management. Two of his children have psoriasis. Therefore the advocacy work of CAPP in helping and supporting patients to manage their conditions and improve the quality of their lives is of special interest to him.

   Morris Manoloson - CSPA representative

IMG 5764Morris F Manolson is currently a Professor and Associate Dean of Graduate and Post Graduate Studies at the Faculty of Dentistry with a cross appointment in the Faculty of Medicine at the University of Toronto. His research focuses on preventing the excessive bone loss associated with osteoporosis, inflammatory arthritis and periodontal disease. In 2007, he received the "Quality of Life” award from the Institute for Muscularskeletal Health and Arthritis, and in 2008 he received the Canadian Institute of Health Research-Institute for Gender Health/Ontario Women's Health Council Senior Investigator Award, both in recognition of the importance of his work towards preserving bone health in arthritis and osteoporosis. He currently serves on grant and training scholarship reviewing committees for the Canadian Institute of Health Research and The Arthritis Society, was a member of the board of the Canadian Arthritis Network from 2007 to 2009 and served on the Scientific Advisory Committee for The Arthritis Society of Canada. His current research is funded by the Canadian Institute of Health Research and has produced three patent applications and over 50 peer reviewed papers which have accumulated close to 3000 citations from other refereed journals (based on ISI Cited Reference Searching).

 Shawn Swayze